Crohn's Disease with Georgina from The Circle UK on Netflix

Episode 16 June 21, 2020 00:32:14
Crohn's Disease with Georgina from The Circle UK on Netflix
Freewheelin with Carden
Crohn's Disease with Georgina from The Circle UK on Netflix
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Show Notes

Georgina Elliott openly shares life living with Crohn's Disease and colitis. Listen into her story living with a stoma bag for several months. Her key take aways are to be patient and be as open and transparent with your job/ school to seek accommodations. You can find her on  Instagram @georginaaurelia, Youtube channel https://www.youtube.com/watch?v=d2FwkAgwZHQ&feature=youtu.be or catch her on Season 2 of the Circle UK https://www.netflix.com/title/81044551

Transcript: https://rb.gy/3l3v2c 

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Episode Transcript

Speaker 0 00:03 And just being really transparent with them. Cause the more transparent you are, they can't really question you because you're being tricked. The littlest is when you stop keeping things and they're like, well, how do I know that you're telling the truth? How do I know? You know, if you really are poorly. So it's just transparency. Speaker 1 00:15 Welcome to FreeWheel in with carton. This podcast shares stories of people with various disabilities and shines a new light on accessibility topics. Our goal is to knock down barriers so we can roll through life a little easier and build a community to do this together. Please rate and follow this podcast or text carton at (470) 588-1215 with comments and suggestions. We welcome you on your journey towards inclusion for all. And now your host Carden Wyckoff global disability advocate and wheelchair warrior Speaker 0 00:51 Today. Joining me is chart GNF, bruh, the circle UK, just to share her spotlight on think the crowd's disease. So welcome Georgina. Thank you for having me. And yes, I'm Georgina I'm from the circle in the UK. I've only just been catching up with the search in the U S and I think it's a lot more entertaining than my series. So I thought I'd chat a bit on my Crohn's disease. I have got Crohn's disease. I was diagnosed in 2017. Um, I actually had it for three years undiagnosed before that, and they kept diagnosing you with literally anything other than Chrohn's disease. Obviously it's a very expensive one as to how to intern the treatment and things. And I think it's a lot effort for, for people to have to sort of diagnose. And I think a lot of people just kind of gave up on me or pushed under the rug because it was too perplexing or difficult or confusing. Speaker 0 01:42 My initial symptoms were sort of chronic fatigue going to the toilet constantly or not at all. It was just swings around folks with that hair loss and weight gain, um, excruciating pain. When I eat certain foods or being sick or constipated, it was just, it really wasn't nice. And I knew something was really, really wrong and there's a lot of blood going, the toilet and stuff. And I just, I knew that it wasn't, it wasn't normal. I was on treatment for about a year. Yeah, but maybe less than a year, about six or seven months, actually I'd say I'm not on steroids as an eight. Today was my maximum. Wow. I got really big moon face. They call it moon face, which is how your face really swells up. And I'm only looking back the other day, my calmer role while I was trying to clear up my phone to see how bad my moon face really was. Speaker 0 02:32 Now I'm like a whole year and a bit on, I was taking as a thigh, premier furniture, half have hours and Jetson myself and the strokes and stuff like that on dancy trying to stop me vomiting. It always vomiting the joke because there's so many and it just was, I was rattling, but seven months. And then I collapsed in January, 2018 and I worked in hospital and they said I had appendicitis, which I didn't so long story short, long story. I was in the hospital for about a month and they kept saying, Oh, you'll get to go home. And I will get to go home now. And I couldn't, I kept being poorly and 40th. And then I got septicemia and I had less than 24 hours. So it was an emergency surgery and I work with an ileostomy bag. So as initial thoughts, well, first off waking up and being like, what is the sex sternal thing? Speaker 0 03:24 Well, he told me just before I went and you're probably gonna wake up with bikes. So we're talking two, three hours before. So I had two, three hours to really get my head around the fact that when I wake up, I'll be pooping up my stomach. And that was, most of it was all of it. After surgery, the recovery, everything was that mental challenge of being like, you have no choice, you're going to be put sleep. You're going to have your insights chopped about out. And you're going to prove that at six months, like your stomach and normally you have a few weeks or so to really channel that and understand that. No, I didn't. And I wouldn't after the surgery, I didn't look at my bike for about three days. I refuse to look down and I actually blogged my whole experience. It's all on YouTube. Speaker 0 04:01 And you see me looking at my bike for the first time. And I was just like mortified, also water nurses. They refuse to even touch it or change it by eight or nine days. I just refuse to even acknowledge it as a part of me until I realized I wasn't going home from Boston to let's change it to this point. So I was like, okay, we'll do anything to get home. And I had that back for about seven or eight months, and then I got it reversed. The reversal process. Wasn't that bad, actually, I don't think, uh, I mean, training your bum hole to go to the toilet again, sources and muscle was kind of comical and tricky at the same time, but that's quite a quick process. And then I remember they said to me, you know, it's really unlikely that your friends will come back for a while. Speaker 0 04:43 You know, you're really healthy enough to have this reversal. And then within three months, the reversal came back and I'm not back on all the treatment that I was on before. So whether I need to have a bunch of them in the future is another story. But right now the treatment is responding well to me, I am, I am the healthiest I've ever been with Chris at the moment, almost in remission. So yeah, that's lot. That's a story for sure. And what is it like? Um, so you were what? 18? 19 2010. Okay. Well, when all this was going down, Oh yeah, it was about 18, 18 nightmare. Absolutely. And you're a senior in high school, maybe vowel to go in the college or university and you know, everything is the world is all you really care about at that age. It's like, how does the world see me? Speaker 0 05:39 I dropped out of college. I didn't go to uni. Like it just took over my whole life. Yeah. Like what were, what were some of those other emotions that went through your mind? Just having to deal with it all I was scared of, of very alone. There wasn't a lot of time all over the internet and social media regarding Princeton is there is now was a massive wave of it now, which is great, but I just felt very alone. I didn't know anyone who had, I didn't know anyone who had Crohn's disease. So I took it upon myself to sort of source friends, find people online and chat with them. And very quickly I felt okay because it's a really supportive community, um, the IBD community. But at first I just felt very isolated and no one understood. And my parents that my brothers, nobody. Speaker 0 06:20 And were there any, you know, like community events that you could go to or was it really just an online community? Is it like your Facebook blogging? It was a Facebook group, a lot of Googling on the Crohn's and class website. There's a helpline. I sort of went on the Crohn's and class, Instagram page. So he was following them. My mom had a few friends at work who had family members with Crohn's and Crohn's disease and colitis. And then I thought, you know what? I'm going to continue with my YouTube channel, really spread awareness because there isn't a lot of the stuff that I thought I needed. So I thought, why did I create the content? And in doing that, I attracted a lot of people who were struggling as well. So I've made friends a lot through that. Probably the most funds I've made have been through me, but story, I love that. Yeah. Having a platform and having that network of people is always the greatest. That's why I love doing this podcast. Cause I just meet so many new, great people and they can't be with others. And so, but what would you tell someone who's first diagnosed? Speaker 0 07:18 I would I'd tell them to be patient it's. It's a very cause it's for me it was patience. Some bigger struggle. Cause I just wanted to know already what my trigger foods were, what I could and couldn't take what my, you know, my drug dosage tolerance was. I wanted to know how much hair I was going to lose my head with this treatment. I wanted to know how long I was going to say I needed to know everything. And actually every single case with Crohn's disease, I can't speak on class. They don't have it. I have a lot of friends who have like, so like it's not my place that with pronouns, every case is different. That's why you won't find a rest of Crohn's disease because everyone has it trigger food. Everyone has some alcohol affects some people, it doesn't affect it. This is really different. Speaker 0 07:58 So it is a case of patients and really working out your tolerance says, I think I'm going to go with about four months after I was diagnosed was the appointment. I probably was like, okay. I kinda know I can't eat that. And I kind of know, I can't, you know, but it did take awhile. And then when I had a burger could eat anything I wanted and it was, it was great. What were some of those adulterated foods that you ate? You had the bag. I saw your thing. You were like, I can watch the whole Titanic movie and not have to get up. It was amazing. I couldn't eat, I couldn't eat a lot of things high in fiber when I had for my bag, because it would break down in my gun. That's obviously my disease. So I had to get off base food, pasta, bread, chicken, baked beans. Speaker 0 08:37 But with students like, Oh my gosh, I was in every color under the sun, red peppers, red onions, spinach, big solids, um, loads of sweet corn loads of pop. It was couldn't eat popcorn, really healthy stuff. But like there were certain things like eat with a bag, like a commute sweet corn often because it would the box and sound the cosmic, you microwave popcorn. Like everyone, everyone said popcorn, Oh my God, what's going on? I had to stop eating nuts. And I love nuts because they split your bag and I had too many leaks and I thought, do you know what? I can't keep making feel all over people. I've got to sacrifice some things. Speaker 0 09:15 Apart from that. I said everything and Crohn's is clearly, I mean, if he doesn't have a bag, obviously it's pretty much invisible disability. How do you talk to people about it? Obviously you seem very open about it, but you know, whenever you're meeting someone or maybe thinking about applying to jobs or maybe going to school or yeah. Aye. I struggled with Crohn's disease because I'm very young. And I think if you're younger, it's a little bit harder. Maybe I'd get in the queue from disabled toilet and people would pull me in be like, you're not going to go and I'd have to then explain to them what my disability was and it's not their business. And I think you have to have again, patience with other people because it's not that people are being ignorant and being rude. It's just that on purpose. They just don't have the knowledge and the awareness about the disease. Speaker 0 10:02 And that's what I think. You, you take on a bit of responsibility to educate them because then they might not do it to the most. And acute, you know, it's a teaching women. I think it's the same with going for a job. I remember I applied for a job and I just broke it down for them straight away and said, look, this is something I'm stuck with. However, I don't think it, you know, it stops me in any way, shape or form performing to the best of my ability. I want to show you what the best of my ability. And if you gave me that to answer, that's fine. I think it's a case of really explaining to people carefully and calmly what it is because the minute you get your back about it and you feel like, you know, it's not fair just that the, that people switch off and they don't want to know, and that's not going to help us, uh, IBD community. Speaker 0 10:40 Or if you all worried about the job, then, you know, I think the worst thing you can do is keep it from your employer until you've got the job and then break it down to some thing that breaks the level of trust. I think they would have a lot more respect for you and hold you in high regard. If you, if you, if you break it down to them just before, during an interview process or when you're first getting to know them, I think. And what are some of those accommodations what'd you be asking for in your workplace? I did actually do the job because they were really not understanding at all of how regularly at the time I needed to go to the toilet. I think she needs some form of understanding where your manager, whether it's a look across the room, if you don't want to make the obvious or a certain light pass or something, just so that you can go and have a minute to yourself and you can go to allow someone. Speaker 0 11:25 I think that's it really, I think in terms of just understanding your employer, the money to excuse yourself, even if you're in pain, you need to have five minutes to yourself cause you're in pain or anything like that. And have sort of understanding of, you know, I will not disrespect you and falling sick left right. And center. And please know that if I do, it means I'm really, really ill and just being really transparent with them because the more transparent you are, they can't really question you because you're being truthful. And just when you start keeping things and they're like, well, how do I know if you're telling the truth? How do I know? You know, if you really are poorly, so it's just transparency, right? That's the key, right? With any kind of relationship that you build that trust and really being open and honest. Speaker 0 12:02 And I think that's something that we're working on it with. The company is really promoting disability, inclusion and acceptance and understanding accommodations and why they're important. Yeah. Who are you to say? Like I'm only allowed to go to the bathroom once a day. Like, you know, so it's not for you to say it. If you're patient with them, they have a lot more room to be consciously empathetic. How do you think it's yeah, definitely. And how do you think it's changed your life for the better? Are there any positive things that come out of it is it tells me a lot having this illness, this one book me a lot. I think before I was poorly, my biggest focus was like friends and bullies and all the normal teenage stuff and like the newest kind of trainers and like the best iPhone and all that sort of stuff. Speaker 0 12:49 And now I'm like, do you know what that all bonus says? My health, my health, which is such a simple thing in a sentence, something that people take for granted so much, whether they're binge-eating binge drinking, not exercising or, you know, like just anything like my health is really important and everything else is a great bonus and I feel it with my health. So that's my physical or mental health is in its best state, my relationship to a great, and I don't think I've learned that I really don't think kind of I've learned how important your health is. If I hadn't had this illness, I know I wouldn't not yet. Anyway. Cause my brother is 27. He's still really annoying. And he'd binge eat with bundles every day. So I know full well I'd probably have followed his steps. Speaker 0 13:31 That's so funny. Yeah. It's a very similar parallel with me, like having a disease and it's being progressive and you know, every year is different for me. I never know what's going to come out of it and just, yeah, all those, like you got a bad haircut or like your nail breaks or something like a lot of this things like just, they don't really matter. So it's really nice to hear that you kind of feel that same way that help the real things that make you a person and yeah. Family and relationships and like health and like clean water. Like those are like quality you need in life to be really happy and healthy. So. Yeah. Well, cool. So another thing is I like to plan a lot of work events and thinking about accessible events and design and inclusion. Is there anything about like an event that you go to, what about, do you go to like concerts and music festivals or other things? Speaker 0 14:27 Hmm. Yeah, I do. I find, I probably go out a lot more now I've not got a bag, but I did have a bad, I really struggled, especially in like nightclub. Yep. And it just ruined the evening for me. So I'd actually avoid it. I'm not ashamed because I don't think that should be a thing. But now, now I've got a bag I've probably got more now I'm as healthy than I do when I was really poorly. I didn't. And I think it's really important for events to become more accessible to people, not trumps bars, restaurants, just places where, you know, the, the, the normal, healthy functioning person will go and really be able to just enjoy themselves and things that they wouldn't think about. I feel like they need to think about more that actually some people need the extra support and need that extra accessibility to really enjoy the experience. Speaker 0 15:13 I don't think it really needs to happen, but I do still go out and I do still pass the, I never stopped entirely cause I'm a bit of a party out of all, but it's really nice, you know, you're in the same boat as me. Sure. And what do you typically look for when you're out and about like, what's always on your mind? I always made sure that the toilet, wherever I am, even if I don't need to use it, it's something it is comforting. I don't think that is from when I was so poorly knowing this one that I feel a lot more comfortable knowing I can access it easily. If I, you know, for example, if I'm in a bar and there's a queue for the toilet, part of me gets spit upon the Gates. I'm thinking if I need to go, I need to go. Speaker 0 15:49 I probably won't, but it's just knowing a can't access to as, and when I can. But the first thing I check when I go into any form of public space, if there is a bathroom or toilet, what about you? Yeah, that would be the same for me, because like, for me, I looked through it through a wheelchair perspective lenses and I then to, I traveled a lot in Europe and that was always like, okay. So if I go somewhere, is the restaurant then to be accessible and will they have an accessible bathroom? Yeah. Well they have grab bars and will it be tall enough? So he's hit or miss I found in Europe. So yeah, definitely. Would you think it's the access is the accessibility is better in Europe or America? I think it just depends on what, what is like the aspect of accessibility that you're looking for? Speaker 0 16:37 I think Europe does a really great job of coming up with really inventive and smart ways of doing accessibility because so many things, our historic, and so they can't just like tear down the building and rebuild it. Right. So, yeah. So sorry, but they're listed as well. And it's so annoying because especially like in London, everything's listed. Yeah. Right. And I say, I found in London is even with the tube, just certain stations. Weren't accessible mine, the gap, mind, the gap, mind the gap. Oh. So annoying stations that have a lift access. I think that's something they really need to work on, but whether they'll do it, it's another story they've got plenty of things they think are more important. So yeah. The other thing in London and here I found is everything's much vertical because it's, there's not a lot of space like out in America, there's so much space. Speaker 0 17:29 So you go into like a target or Walmart and they're like the size of a football field, like so big, quite a few times I've been to Florida, LA Miami in New York and New York is so tight, but Florida Walmart, like Macy's, I will kid, I can't see the end of the shop. No, I can probably throw a ball at the wall. Absolutely crazy. Well thinking about just like the space right. In the distance and for you, when you have to go to the bathroom, like, is it an urgency? So you're like crap, no pun intended, but like, is it a distancing where you're like, okay, that's really far away and I have to go now or did you find that experiencing instant? Oh my gosh. I have to go right now. Now I've probably got about 10 minutes. I think. I prefer just to be like, okay, where am I at? Where do I need to go? Who do I need to ask? Speaker 0 18:36 Just thinking about, you know, just like I am like dating and everything. We both know what the challenges bring with having a disability or just being different. I would say that initial conversation and you, you watch, is it just me? But you've watched their face so intently because you want to see, because they've got that face value sort of reaction. And then you've got that reaction that sort of behind their eyes and you look for it, cause you just, and half the time leave it, you fine with it. But you look for it. And you're really worried. They're not gonna that's. That was my biggest stress. When I had a bag, I was like, you know, are you just being nice because you have to be nice. Right. Well, you being nice because you, you know, you really, you know yeah. What has that, I mean, have you had other people that have been like, Hmm, no, I can't deal with this. Speaker 0 19:23 I've had a couple of people who've been like, no, that's absolutely not, not me. I've had some people, you know, who are, couldn't call us and I've had some people who love me even more for it, you know? So it varies with everybody. Oh, sure. Yeah. Well, I know you kind of got diagnosed later in life, but I'm thinking about K through 12 and even uni, just what would that look like? What would support look like for you going through education? It would be, for me, my biggest struggle in education was the teachers not understanding the tool. Thank you. The teachers don't understanding a tool, you know, how best to handle my needs and actually being in a classroom with other people who didn't think it was sad that you got to leave the room on a regular basis and things like that. So my biggest thing that I'd love to happen in schools more would be to have more disability awareness, sort of sessions and classes. Speaker 0 20:15 I feel like schools are great at teaching. You know, first this is an algebra, but everyday life and the different types of people you're gonna encounter. And that you're actually around every day and learning with every day, you need to educate yourself. And in schools, I feel like as much as it's your responsibility to do it, it's also the teachers because it's a place of teaching. And I feel like the teachers are great on saying, you know, we're really inclusive. You know, we, we really liked diversity, but actually using it, isn't using it as an example to really educate people. Good. Cause it's great. Kids are inclusive, but what they to have the some what they're being intrusive off. Right? Yeah. And I think also I've gone to career panels and my mom's fifth grade class and I know just going to them, they've never seen a wheelchair before. Speaker 0 21:00 They're always fascinated by it. That's the thing. It's why aren't we talking about disability is in the K through 12 because that's where the prime learning is. Oh, cool. Stephanie, that's what, that's what I mean. I think, I think also, you know, it is nurture. It's not nature. You're not born with these negative use of these cities, you know, old school opinions. You're taught them. And I think when your mind's most moldable is when you should be taught, because then it becomes the norm because it's great, you know, learning these things or meeting someone who was close with his words or when you're later on in life and you've maybe lived 15 years without meeting anyone, who's a bit different. But if you will sort of educate, you know, you're educated on that from such a young age, it becomes the norm, right. Would you like to see more education or trainings and textbooks and on the media? Speaker 0 21:47 Yes. I'm planning to go to some primary. I was meant to be going to a few primary schools and doing some readings and stuff with children, but then a Corona virus hit so Pitt in that. But I think one thing it and actively do is link to different things. And that's why I was really keen to do a podcast because I really, you get good energy and really light people that are in the same boat as me, which is like, do you know what these are? This is what I feel, but I'm going to crack on and have a go at myself and take, take steps forward myself. I think a lot of people that sit in and want things to happen, but do nothing about it. So the aim is to do anything for herself and see what happens. Okay. Yeah, for sure. Just always, I think that's the best thing that we can do. Speaker 0 22:28 We have a story, we have a voice and go out and do it and talk about it, write down those barriers, build that community. Those are allies, especially at a young age, because like you said, the kids are where they're most prime and they're wanting to learn exactly. And they find it fascinating at that point. So they don't even think it's, you know, different or weird or whatever they like to say that, you know, they'll think is really cool. And they'll be like, well, so no more questions. Well, it's a little more inclusive. Yes. I think kids are also way more blunt and honest then as you do as an adult, because you've learned that it's not okay to really like so loud. Yeah. So I always get those kids all the time. I was just like, why are you, why are you sitting and rolling at the same time? Speaker 0 23:12 Or like, what's wrong with you? You know, they like to say those things about, but yeah. Feel free to share more about Crohn's and the challenges that, that was all like my name, questions that I had, but with Chrohn's disease, I think the most important thing is just to be really patient you, your body. That's the most important thing. And I actually thought people of currencies get really frustrated because they're like, why me? Or, you know, they'll, they'll say, you know, one day you really find, you don't even have you feel like you don't have the disease and the next minute it's not a wind out of you and you, you can't move. And I think the most important is to surrender to your body when it needs to rest, give it the rest. So be it down, don't make it. Okay. Speaker 0 23:54 So then to have a death, we need to let people have our know that's what you'll need to do. And so feel, hope support you. And if you're around people that don't support that find new people to be around, it's as simple as that. Right. And what would you like to see more? Or I guess, let me think about it. Like in the, I remember when I was watching the Victoria secret fashion show, I looked at those women and I'm like, well, none of those represent me. What would you like to see more in the fashion industry? How could, like, how could you represent Crohn's disease? Would it be like having a bag outside or I guess that's the most notable thing. Yeah. I think as much as it's the whole bag thing, I think it's also just normal, real body, a body that isn't the size for my stuff covered in scars. Speaker 0 24:39 Now from surgery, show us a body with the scar shows the model bikini moderate has a massive open surgery. Scar is fundamental because that is a strong warrior woman. And I'd feel a lot better watching her sister, her stuff down the catwalk, because I can see, obviously she's coming the long way. She hasn't gone through a lot of real women. Does she know whether that showed in the Bible or not? I think is great. I think just real human bodies. I think, you know, women and men in wheelchairs, women and men on crutches and, um, you know, overweight people, very slender people, tall, short, anything, but just a lot more diversity, not just a white and a black model or ginger and a blog. Do you know what I mean? That doesn't mean you're, you're, you're, you're diverse and that's what annoys me. I think the modeling industry a lot claims that to be diversity and it's not right. Speaker 0 25:34 Yeah. I think just like the media, the, all of it just kind of portrays people in it and not so realistic way. What, what are some of those other biases that you see either with disabilities or Crohn's or anything else that you want to sure. Oh, the biases. I think people think that you are on just because one day or five minutes, they're like, I can have a great day at school. And the next day, my mom's like, I can't move. She says she can't come in. And I'm like, what? She was fine yesterday. And my mom's like, she's chill and coming down with a cold. Yeah. She's having a Crohn's, that's very different. And I think people don't have a lot of patience for people when they can't see a lot of the human minds to see it. And you know, with Crohn's disease and invisible disabilities, you don't see it. Speaker 0 26:22 So that, that good. So talk to me about a bad day that you have nowadays, the type of data that I have now, I'll get up about 9:00 AM and I'll probably take the time that targets my disease sauce, and almost like pouring a really cold glass of milk on lot for like, it just cools it down for the day and then I'll just take on sickness. Cause it makes it a bit dizzy and then I'll get on with my day. And then once a week I will inject myself with something called Humira, which targets TNF, which is like a Shima neurosis thing. I don't really know. I just do as to take on, I will make sure I eat as much as I can because I love food. And it was tough when I couldn't eat anything without being in pain, like a packet of crisps. Speaker 0 27:06 And now I literally inhale everything that's in my sight. I know we've been watching Netflix at the moment cause it's locked down, but I'm trying to do some form of exercise everyday because exercise really helps my crones and helps with my chronic fatigue. So I'm trying to do with exercise. That's sort of my, my day at the moment. What about yours? So my day now, I guess, I mean, I have a job, so I work from nine to five and then usually after calls, zoom, zoom calls a lot of them when I'm taking a branding course right now. So I'm trying to really like build up this podcast and like create it as a whole brand and products. So learning how to market it and advertise it. So when I interview a lot of people on the weekend, so yeah, that's kind of like my day to day. Speaker 0 27:49 And then I, I do a lot of advocacy at the city government. So right now a lot of it is virtual. So I do a lot of things of transit equity. So I, I try to make a stop successful. I write them and I have them fix them when they're broken or whatever. So I do a lot in the city space. I'm trying to make my physical environment more accessible because that's the biggest obstacle for me is there's only so much I can do if that's not a paved path, I can't access it. Yeah. So what does a bad day look like for you? When is it, when are you in physical pain? You can't move. What does that look like for you? A bad day for me is I probably get up and I'll go straight to toilet. I'll know about day's coming when I'm on the water, probably 10 minutes and then I'm so tired thinking about the bed. Speaker 0 28:41 I will probably sleep in the afternoon. I have a piece of toast if must've been handle it and I will try and I will not, my body will just turn off. My body is almost like a TV on standby, lucky if it needs to go in this, even if my brain is wide awake and my body's like, I have to lay in bed and I'll just sell my phone or something, but I can't, my joints were swells in time. So I struggled to get the stairs and stuff like that. So for me, it's just bed bound and it can last from one day to five. And there's no telling when that will happen. It just kind of just tell him when I will have not had one for about a year now, which is why I'm doing wonderful. I know, I know it's beautiful. Well like your spirit, just so you can feel it. Yeah. It really shows you so much. I do feel so much better. Not just really proud of me. Speaker 0 29:34 Okay. We'll just see how long it lasts. Oh, how wonderful. I'm so glad for you to hear that. Hopefully. So I guess, are you in a state of remission or is it just like a good state? What's that term I got called about three weeks ago to say that was in a state of remission. Oh, this is the first pop some bubbly I cried at first. And then there you go. It was amazing. Now I'm anxious because I feel like because when you've been through some things, so traumatic is, you know, what I did when I was poorly, part of me was anxious. I'm going to give up the spot, but I'm also trying to take every day as it comes. Oh yay. Yeah. Every day is a day that you have to take it on and the land for what it's going to be. And if it doesn't go your way, then that just that's the day. Right. And so, well, thank you so much for sharing your story and your light and your energy. And I really appreciated your time. Is there anything else where can people find you talk, give us your plugs. Speaker 0 30:45 Follow me on Instagram Georgina Orelia, which is G E O R G I N. AA, U R E L I a. And my YouTube channel, which is Georgina again, I didn't know you had a YouTube channel, so I'll, I'll have to watch it and check it out aside. Do you have a YouTube channel? That's where I filmed all my hostel experiences because I thought that I'd only been in hospital for two days and then I ended up being enough for a month for the bag and you can see my real reactions closer. I wasn't expecting it, so, Oh wow. That's a great, well, that's so perfect because there's so many people that just don't know what it is. And maybe someone who is going through that or maybe could go through that. They have an idea. So I love sharing those real time experiences. Yeah, it was, it was, it was, uh, difficult back to see how polio was so nice because it shows yeah, you're a warrior. You really are. Thank you so much for having me. You're welcome. All right. Thanks for JIA. Take care. Thanks. Bye. Bye. Speaker 1 31:50 Thank you friends for listening. Please rate and follow this podcast or text card at (470) 588-1215 with comments and suggestions tune in next week for another disability topic. Speaker 2 32:05 <inaudible>.

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